The THYROID Thread

[macraven]

@Christine
@macraven
And everyone
Hope you are all doing well. Thought I would pop into this way too quiet thread
Since my last post my blood tests were good.
I have had major dental issues and had to get another tooth pulled. Now I have a temporary crown and having a root canal in 2 weeks. I have a mammogram scheduled the end of the month. Still need to call about a bone scan and make appointments for the permanent crown work. Since I have the aortic implant I now have to be premedicated with a dose of antibiotics before all dental procedures, sigh.
Check in when you can.

Hello to all!
I check in at times to see if anyone has posted
Glad you updated us on how you are doing !

I know what you are going thru as had two molars removed this summer also
I always have to take 4 antibiotic pills an hour prior for any type of dental appointment

 

[Christine]

@luvmarypoppins
@macraven

Thanks for the earlier tag! Helps me get back to the thread. Sometimes I come over and no one has posted in so long! I'm doing well. It's been a long recovery from my foot surgery. My left foot is no longer flat, my posterior tendon no longer hurts, but the outside of my foot hurts and that's directly related to the surgery. The recovery for this surgery is 12-18 months so my doctor isn't getting too excited about anything yet but I think he also thinks this pain probably should not still be there from the surgery. We shall see. Anyhow, on the thyroid front, I had my 6 month check up in August. He wanted me to do an ultrasound because it had been 5 years. I put it off until March of next year because I'm just not comfortable going into a healthcare setting where someone is up in my face with the Delta variant surge (or at least it was in August). Things are settling down a bit and they are mandating vaccines for healthcare workers now so March should be good.

My office made us return to work last week. We are on a hybrid telework model so for October we only go in for 2 days per week but in November it's 3 days. Everyone is disgruntled that they've rushed this (particularly since the vaccine mandate cannot be enforced until November 22) but I'm working in defense and our leadership is concerned about work culture now, China threats, etc. Not that me, a financial person, makes a dent in defending against China, lol!!! So I went to work on Monday and it was pretty empty. Tuesday was a different story and I was around more people than I had been in 18 months so I'm getting nervous. I had my last Pfizer dose in April (in hindsight wish I had Moderna) so it sounds like my vaccine antibodies are probably pretty low now. I don't legitimately qualify for a booster although I'm sure I could get one without too much trouble so I'll probably do that in the next few weeks.

Otherwise, I'm pretty bored most days and longing for some sort of vacation. The Disney crowds look insane right now and I wouldn't get near that place COVID or no COVID because of the 50th anniversary. It might be next Fall before I get back. I want the parks to be back to 100% normal when I go and I hope that's true for next year.

Oh well, glad everyone is doing well!

 

[disneyboundteacher]

I was diagnosed with Hashimotos disease 11 years ago. Does anyone else experience fibromyalgia symptoms?

 

[macraven]

I have not experienced fibromyalgia at all

 

[luvmarypoppins]

Just wanted to say Happy Thanksgiving all!
Everyone coming here tomm.

The root canal was 2 hour. The permanent crown does not fit well. I may have to go to a gum specialist.
Mammogram was good. Got a flu shot.
Getting covid booster Dec4th.
Still need blood tests, neck sonogram and dexa scan scheduled for December.
My cousins daughter and family are checking into Yacht Club today

Check in when you can.

 

[macraven]

Hope all have a wonderful Thanksgiving tomorrow!

 

[Ravensorrow]

I was diagnosed with Hashimotos disease 11 years ago. Does anyone else experience fibromyalgia symptoms?

I have Hashis and Fibromyalgia. Some days are so bad.

 

[luvmarypoppins]

Just popping in to say Merry Christmas and Happy New Year 2022 to all!
Today I got my blood tests in prep for my pcp visit and endo visit in January. My endo writes on the script for Jan or Feb. So I had to say - oh my dr. means make an appointment to see me then at the front desk. Gotta do what I gotta do. With covid numbers spiking around here there is no way I want to go back there again. My endo appointment is Jan. 20 and the pcp is Jan, 4.
Now I still need a neck sono and dexa scan.
Oldest ds just got a job offer today for a job he really wanted and yesterday he got an early bday present and saw the Dallas Cowboys game. Last weekend was his wife’s early birthday present, They went to the Amish country in Pennsylvania. He got a picture with an Amish author I follow. Sherry Gore. I even said hi on the phone to her!
Next up I need to look into some genetic testing that could affect the ds and more dental stuff in that never ending saga.
Ds3 has been assigned to covid icu a lot. He said fully vaccinated people are getting breakthrough cases and of course he will expect the Christmas and New Years waves . Sigh.
Check in when you can!

 

[lisaviolet]

Hi all,

Need some assistance. Had a thyroidectomy, just under two months ago.

When I first took Synthroid I felt fantastic but exhausted (I know! But so many other symptoms disappeared that I was elated hence fantastic), but my TSH rose to 29 - so a decision was made to increase dosage early (My T4 was low as well; no T3 tested).

Things went well & then suddenly about two to three weeks in I feel like the floor has dropped out. Mentally, physically, brain fog etc. I know I have to push through and wait it out. I believe my six week blood work is the middle of June.

But is this normal? To be such a rollercoaster? I am dumbfounded to be on both ends - "wow" to "horrid" in such a short time. And the horrid feels like being numb. And it came quickly and has surprised & unnerved me. I believe it is the medication, meaning something not balancing, as I felt other sudden changes as well.

My endocrinologist has asked me to wait for six to eight weeks unless I felt signs that would deem being over-medicated such as heart palpitations. I have no signs in that area.

Thank you in advance for any insight to help me feel more hopeful about the timeline.

 

[macraven]

I have issues with my thyroid at times as my level can drop or rise
I have been on it for over 35 years and still have issues so it stays in a correct range

Four years ago my doc switched me to synthoid only
I can’t take the generic meds for my issue
Even a one pinch off my needed level causes issue for me

I did improve using brand name and not generic

 

[Haimia]

Same here for name brand synthroid. I also needed to add T3 or Cytomel (generic is liothyronine) as I do not absorb T4 well. It took a DO doctor who had similar problems to get me where I am at now. It is difficult to keep on the same dose as doctors do not like my low TSH, but I have no thyroid to stimulate (the DO retired!).

 

[luvmarypoppins]

@lisaviolet I hope your blood tests give you some answers. Wishing you all the best. I take name brand synthroid since I have thyroid cancer
@Christine Hope your trip was good
Hope everyone is doing well. Check in when you can.
My update. Our whole family except oldest ds had covid. Ds3 had it twice and Dh had bounce back covid after his Paxlovid pills.
Went to cardiologist yesterday. He is adjusting my meds as my bp is too high for this aortic implant. I am seeing the vascular surgeon on Tues. My l leg has a swelling problem. Between these other meds I run to the bathroom a lot. So frustrating. I don’t see the endo till sept. Might go to Disney in Oct,
Ds3 has graduated again and now he needs to take the family nurse practitioner test to be certified. He works part time in the ICU’s and picks up extra shifts. They are desperate there.

 

[Christine]

@lisaviolet I hope your blood tests give you some answers. Wishing you all the best. I take name brand synthroid since I have thyroid cancer
@Christine Hope your trip was good
Hope everyone is doing well. Check in when you can.
My update. Our whole family except oldest ds had covid. Ds3 had it twice and Dh had bounce back covid after his Paxlovid pills.
Went to cardiologist yesterday. He is adjusting my meds as my bp is too high for this aortic implant. I am seeing the vascular surgeon on Tues. My l leg has a swelling problem. Between these other meds I run to the bathroom a lot. So frustrating. I don’t see the endo till sept. Might go to Disney in Oct,
Ds3 has graduated again and now he needs to take the family nurse practitioner test to be certified. He works part time in the ICU’s and picks up extra shifts. They are desperate there.

@luvemarypoppins--thanks for the update. I forget to come here. My trip was pretty good. Still didn't feel 100% myself after my April COVID infection but I did okay. I was feeling better by the end of the trip, but then got home and got all congested again. Might be allergies but it seems worse. Today, I think I might just have caught a small cold that is exacerbating my respiratory tract that was weak after COVID.

I've heard about the rebound with Paxlovid but I still sort of wish I had taken it as my symptoms got pretty intense. I have heard the bounce back is annoying but it never gets too bad.
Disneyland was fun. I still prefer Disneyworld (DL fans are not liking that!!!) but I just think its more "grand" and more "vacation/resort" feeling, not that there is ANYTHING wrong with DL. It was SO crowded though. I've never been in WDW with that sort of crowd density. No wonder I have a cold!!

I go to the endo in August for my usual check up!

 

[macraven]

i am delighted this thread has new life in it


Hope it continues and others add to it

 

[lisaviolet]

Thank you so much everyone for your experience & advice. It is still awful but trying to remain optimistic. My new labs are back and still not in normal range, but better.

 

[macraven]

I signed up with AbbVie program for my synthroid by mail order

My insurance program did not cover brand name
I couldn’t take the generic and had so many issues with it not being at the exact level i needed daily.

What I was paying for my meds, has now dropped to $25 a month

I found the information by google
I do hope this info will help others

 

[Christine]

I signed up with AbbVie program for my synthroid by mail order

My insurance program did not cover brand name
I couldn’t take the generic and had so many issues with it not being at the exact level i needed daily.

What I was paying for my meds, has now dropped to $25 a month

I found the information by google
I do hope this info will help others

Just curious if they do anything to protect your thyroid meds from heat? Thyroid medication is extremely senstive to heat and from May through October here, we have too many 90 degree days with, in my case, too much time with the meds sitting on the mail truck.

I ended up switching to Levoxyl which is a brand name that is treated as a generic. Over the past 4 years, my thyroid levels have been amazingly stable on it whichi s actually more than I can say for Synthroid where occasionally, for no known reason, I trend hard to the hyperthyroid state.

It used to pay $20 for a 3 month supply (I get one month "free" if I do a 90 day supply) so it's generally around $10 per month. I just picked up my latest batch and it was only $17.23 so obviously the monthly price has gone down.

 

[disneychrista]

I just had my annual blood work and as I suspected my TSH is high again. My T4 has always been at the low end of normal but still "normal." In addition to that my ferritin & B12 are both low. I expect the doctor to just send in a script for a higher dose of levothyroxine and tell me to take iron & B12. But I got a call yesterday that she wants to me to come in to go over the results, should I be worried? When I first became Hypothyroid, she only called and said you need to take levo, I called in a Rx. I actually found out first by having Walmart pharmacy send me a text saying my Rx was ready to pick up.

Does this mean something more is going on? Or am I just over thinking?

 

[Caseheidi]

I know that my Endo likes to touch base every year and review how things are going. He also likes to do an ultrasound each year (I had my thyroid removed due to cancer) and he gets a reading on more then just my TSH. It could be routine, or they could want to do further testing to make sure there are not other factors. If you have not seen her in person in a while, it may just be time to meet in person. Good luck, hope things are okay!

 

[disneychrista]

I know that my Endo likes to touch base every year and review how things are going. He also likes to do an ultrasound each year (I had my thyroid removed due to cancer) and he gets a reading on more then just my TSH. It could be routine, or they could want to do further testing to make sure there are not other factors. If you have not seen her in person in a while, it may just be time to meet in person. Good luck, hope things are okay!

I had my regular well check on Monday last week. So this is just to discuss results. My daughter said Hopefully it is just complicated & not scary. So that is one way to look at it. To me, as a lay person. I see the results and say okay up the levo, take iron & b12. But to a doctor it could mean something else completely.