Breezy,
I think it is really important to find a neurologist your DH is comfortable with. My DH saw Dr. Kissel at OSU. He was a wonderfully compassionate doctor.
FWIW, i read the symptoms your DH has, and only a few things were similar to what my DH had with ALS. It also seems like your DH's progression of problems is much slower than the course ALS would take.
I hope you find the answers you are looking for.
-Marti